Testing digital tools to measure ALS symptoms and physical changes

Plain-English translation of NCT06820008 on ClinicalTrials.gov ↗ · Source last updated February 2025 · Translation generated June 2026 · How we translate trials

What is this trial?

Researchers are studying whether new digital tools — apps on smartphones and tablets, plus wearable devices — can accurately measure how ALS affects your body over time. These tools are designed to track changes in speech, swallowing, strength, hand dexterity, walking, and breathing. The goal is to make it easier for doctors to monitor your condition from home and understand whether these digital measurements work as well as traditional clinical tests.

Currently, measuring ALS progression requires frequent visits to the clinic, which can be difficult for people whose mobility is limited by the disease. This study aims to see if digital tools can help doctors track your condition more easily, more often, and from your own home — potentially catching changes sooner and reducing the burden of clinic visits.

Do you qualify?

You likely qualify if…

you have been diagnosed with ALS by a neurologist using standard criteria
you are enrolled in the Precision ALS research study
you are able to understand what the study involves and give your informed consent
you have a smartphone or tablet and are willing to download and use study apps
you are 18 years of age or older
you have reliable broadband internet at home and are willing to use it for the study

You likely don't qualify if…

you have been diagnosed with a neurological disease other than ALS
you have active dementia or a psychiatric illness that would make it difficult to follow the study schedule
you have another serious medical condition that could make the study unsafe for you or prevent you from participating fully

What participation looks like

You will use various digital tools at home over the course of the study, including smartphone and tablet apps that measure your speech, swallowing strength, grip strength, hand dexterity, walking ability, and breathing. Some devices, like activity trackers and spirometers, will collect data remotely. You may also complete surveys about your symptoms and participate in a brief interview to share your thoughts on how easy or difficult the tools were to use. The study is designed to fit into your daily routine as much as possible.

AI-generated summary from trial data · Jun 4, 2026 · Not medical advice

Trial locations(1 site)

Ireland

Beaumont Hospital, Dublin, Dublin

View full record on ClinicalTrials.gov