Plain-English translation of NCT06919224 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
Read our Sickle Cell Disease research guide →This study doesn't follow the usual testing phases — it may be an observational study or a different type of research.
This trial is testing a mobile app and booklet designed to help adults with sickle cell disease understand and manage their condition better. The app and booklet present expert medical guidelines in a way that's easy to understand and use in daily life. Early results suggest that people who used this tool had fewer emergency room visits and hospital admissions compared to those who didn't.
Many adults with sickle cell disease don't know about proven treatment guidelines that could help prevent serious complications. Even though doctors have access to these guidelines, patients often don't, and this gap leads to more emergency visits and hospitalizations. This trial aims to see whether giving patients easy access to these guidelines through an app and booklet can help close that gap.
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You will be randomly assigned to either receive the new mobile app plus a guidebook, or to continue with your standard care. If you're in the app group, you'll use the mobile application on your phone and reference the booklet as tools to help manage your sickle cell disease. The study will track your health outcomes and ask you about your knowledge and experiences over a period of several months to see whether the app and booklet help reduce emergency visits.
AI-generated summary from trial data · Jun 3, 2026 · Not medical advice
United States