How physical function affects quality of life in ALS patients

Researchers want to understand what affects quality of life for people living with ALS (amyotrophic lateral sclerosis, also called motor neuron disease). While we know that weakness and loss of physical function can impact quality of life, newer research suggests that changes in thinking and mood may also play a role. This study will ask you to complete surveys about your quality of life and physical abilities to help identify all the factors that matter.

Most ALS research has focused only on how physical weakness affects quality of life, but doctors now realize this may not tell the whole story. Some people with ALS also experience cognitive and behavioral changes that might impact their well-being. This study exists to fill that gap in understanding so doctors can make better decisions about how to support and care for ALS patients.