Building a sickle cell disease patient database in Egypt

This study is creating a database of patients with sickle cell disease at a hospital in Cairo, Egypt. Researchers will start by collecting information from children, teenagers, and young adults who have already been seen at the hospital, and then follow some of these patients over time to track how their condition changes. The goal is to build a better understanding of sickle cell disease in the Egyptian population.

Sickle cell disease affects many people in Egypt, but there is limited organized information about how the disease progresses and affects patients in this population. This registry will help doctors and researchers better understand the disease locally and potentially improve care for future patients.