Plain-English translation of NCT01018537 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
Read our Multiple Sclerosis research guide →NARCOMS is the world's largest patient-driven registry for multiple sclerosis, where people with MS share their health information to help researchers. Over 42,000 people across the United States, Canada, and more than 50 other countries have already participated by submitting their health data by mail or online. Your participation helps guide new research and supports the development of new treatments for MS.
By collecting real-world health information from thousands of people living with MS, this registry helps researchers identify patterns, understand how the disease progresses, and develop evidence to support new treatments. This approach has already led to over 100 published research studies that have improved MS care.
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You would submit your health-related information to the registry, either by mail or through an online portal. This is an ongoing, long-term study with no set end date, so you can participate at your own pace. Your contributions become part of a large database that researchers use to study MS and improve treatment options.
AI-generated summary from trial data · Jun 4, 2026 · Not medical advice
United States
Collaborators
Consortium of Multiple Sclerosis Centers
Enrollment target
~50,000 participants
Started
January 1996
Primary completion
December 2050
Age range
18 Years and older
Last updated on clinicaltrials.gov in November 2025.
Reach out to the team running this trial. Response times vary — some teams are faster than others.
Central contact
NARCOMS Team
Mellen Center for MS / Cleveland Clinic
Tell us you're interested and we'll help connect you with the research team. We'll walk you through what to expect first — no email needed to get started.