Plain-English translation of NCT02980640 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
Read our Multiple Sclerosis research guide →This is a national registry study in Switzerland that invites people living with MS to participate as active partners in research. Rather than being passive study subjects, participants help researchers understand how many people in Switzerland have MS, how they manage their condition day-to-day, and what treatments and support they use. The study uses online surveys and optional medical record reviews to gather this information.
Very little is known about how many people have MS in Switzerland or how well current treatments and support systems are working for them in real life. This study exists to fill that gap and give people with MS a voice in shaping future research and care.
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You can choose how involved you want to be — from filling out a single survey to completing surveys twice a year and allowing researchers to review your medical records. Most communication happens through an easy-to-use online platform, though paper questionnaires are also available. You'll receive summaries of your own data as charts and tables, and the platform includes a personal diary feature for tracking your health information.
AI-generated summary from trial data · Jun 4, 2026 · Not medical advice
Switzerland
Collaborators
University of Zurich, Schweizerische Multiple Sklerose Gesellschaft
Enrollment target
~10,000 participants
Started
June 2016
Primary completion
June 2041
Age range
18 Years and older
Last updated on clinicaltrials.gov in May 2025.
Reach out to the team running this trial. Response times vary — some teams are faster than others.
Central contact
Milo Puhan, MD PhD
University of Zurich
Tell us you're interested and we'll help connect you with the research team. We'll walk you through what to expect first — no email needed to get started.