Plain-English translation of NCT05632978 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
Read our Epilepsy research guide →Researchers are building a comprehensive database of people with epilepsy in South Wales by collecting their routine medical records and asking some participants to donate blood samples. The goal is to better understand epilepsy—how it develops, which treatments work best for different people, and what biological markers might predict outcomes. This research doesn't change your regular care; it simply uses information you're already providing to doctors plus optional biological samples.
Epilepsy affects people very differently, and doctors don't yet fully understand why some treatments work for certain patients and not others. By studying medical records and biological samples together, researchers hope to identify patterns that could help predict treatment response and improve care for future patients.
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You'll continue your regular epilepsy clinic appointments—nothing changes about your normal care. During these visits, researchers will ask permission to use your existing medical records and test results. If you agree, you may also be asked to donate a blood sample. In rare cases where you're already having brain surgery or a spinal tap as part of your regular care, you might be asked to donate extra tissue samples. There are no additional clinic visits required beyond what you're already doing.
AI-generated summary from trial data · Jun 13, 2026 · Not medical advice
United Kingdom
Enrollment target
~2,000 participants
Started
April 2023
Primary completion
December 2032
Age range
16 Years and older
Last updated on clinicaltrials.gov in February 2025.
Reach out to the team running this trial. Response times vary — some teams are faster than others.
Central contact
Khalid Hamandi
Cardiff & Vale University Health Board
Tell us you're interested and we'll help connect you with the research team. We'll walk you through what to expect first — no email needed to get started.