Track your transition from pediatric to adult epilepsy care using a new support model

What is this trial?

This study is testing a new way to help young people with epilepsy transition from pediatric (children's) care to adult neurological care. The program is designed to prepare teenagers and young adults to manage their epilepsy independently and to build a strong relationship with their new adult doctors. The researchers want to see if this structured transition program helps improve outcomes and makes the switch to adult care smoother.

Moving from pediatric to adult care is challenging for people with epilepsy because the approach to medical care changes dramatically — pediatric care involves parents, while adult care focuses on the patient's independence and self-management. This trial exists to test whether a dedicated, planned transition program can better prepare young people for adult care and improve their long-term health and quality of life.

Do you qualify?

You likely qualify if…

you have epilepsy or an epileptic syndrome, with or without mild intellectual disability
you are at least 15 years old (for the young people group) or at least 18 years old (for the adult group)
you have been regularly seen at this hospital for epilepsy care, with at least two documented visits
you or your parent/guardian can provide written informed consent
you may have other medical conditions that do not interfere with your ability to participate

You likely don't qualify if…

you have moderate to severe intellectual disability
you have not been regularly followed at this hospital for epilepsy care
you do not have epilepsy or an epileptic syndrome
you or your guardian cannot provide informed consent

What participation looks like

If you join the young people group, you will be enrolled in a new transition program called 'DH BRIDGE' that prepares you for adult care through structured support and education. If you join the adult group, you will share information about your epilepsy care and how you have adjusted to adult neurology services. Both groups will be followed at the hospital with regular visits, and researchers will track how well the transition program works and how it affects your health and self-management skills.

AI-generated summary from trial data · Jun 4, 2026 · Not medical advice

Key details

Sponsor

Fondazione Policlinico Universitario Agostino Gemelli IRCCS

Enrollment target

~64 participants

Started

November 2025

Primary completion

December 2028

Age range

15 Years and older

Last updated on clinicaltrials.gov in May 2026.

Contact the research team directly

Reach out to the team running this trial. Response times vary — some teams are faster than others.

Central contact

Domenica Immacolata Battaglia

Fondazione Policlinico Universitario Agostino Gemelli IRCCS

Interested in joining?

Tell us you're interested and we'll help connect you with the research team. We'll walk you through what to expect first — no email needed to get started.

Better Support for Young Adults Moving to Adult Epilepsy Care

What is this trial?

Do you qualify?

What participation looks like

Trial locations(1 site)